Thursday, June 8, 2017

Special Order Cookie

I’m really tired of it being assumed that because I’m in Canada I’ll automatically get good medical care. Truly, this is not the case for me, and many others like me, who are living with rare and complex illnesses in many countries which have socialized healthcare systems and/or would be considered “developed” countries. 

Here, you can get reasonable quality medical care - if you have certain illnesses. Ones that are more common, and have had a lot of research, money and most importantly of all, cost effective treatments invented and readily available on the market. Those treatments are like that because the illness was common enough that the "med biz" took interest in investing in discovering treatments for it, because it would be profitable. Those illnesses are more common, and thus the treatments or more "in demand." I'm talking of things such as; more common forms of cancer, MS, HIV/AIDS, Diabetes, to name a few. If you have these kinds of illnesses here, you'll likely get more decent medical care. 

However, if you have a more unusual, rare and/or complicated illness, you won't be as lucky. If you want treatment, you'll have to do a lot of paying out of pocket for it. Also, this is especially rough for Canadians, as we don't have many options up here, in terms of quality private medical care, and will often have to, in the sick states we're in, find extra time, money, energy and help to afford special diets, special supplements, more unusual and not as 'in demand" medications, tests, therapies, and, if we really need, travel to the USA to get private medical help. 

This is why it's so rough to be a Canadian (or anyone living in a country with a similar system) with rare/complex illness. Many of us in are this situation, particularly if we're financially restricted. Many of us head to early graves this way. We suffer badly and die because we can't get the kind of help we need. It's not much different for us than it is for those who are ill and unable to afford help in the more "developing" countries. 

Getting decent and secure medical care when you are sick, when in living in a country with socialized healthcare, is really a matter of luck. It's complex, but that's kind of what it comes down to. You have to fight for yourself for any little "piece of the bread." The purses that dole out help measures are very tight and limited. Budgets are tight. The rarer and more complex you are, the worse this is.

It's like the analogy of cookie cutter moulds. You'll be with much better luck if you fit that more commom mold. In fact, let's go further to say, if you "fit that recipe." So if you're a Chocolate chip cookie or an Oreo, you're in a pretty good position to get the right help and care you need. If you're a Vanilla Oreo, or a Rainbow Chips Ahoy, you might have a bit of a harder time, but with some efforts and 'extra advertising' you have a decent shot of getting what you need. 

However, if you're a Gluten Free Lavender mint or Star Anise rice flour bisque from the Rustic Organic Bakery, you are kind of screwed. In that case, better do your research, learn all you can, learn about natural medicine too, examine your lines of credit, art/create and sell on Etsy from home, write a damn good sellable book, read some articles on how to successfully crowd fund, etc..

That's right, if u r that "special order cookie" honey...U better get to work to "survive in the market".. in a good ol' do or die kinda way ;) !

(as if that doesn't add 'extra pressure' to being sick)

Sorry to be a cynical, but #tellitlikeitis #notasoftkill #realitysucks ... Being "unusual" might seem cool, but in many ways, it actually really sucks. Being the "special order cookie" is brutes.  

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